Im having a night off Blogging! So I thought I would bring in a special guest to cover for me. You may have been anticipating this moment or this may come as a nice surprise - Mr Shane Prosser himself is my guest blogger. Enjoy!
Kelly
I'd like to start by saying a big thank you to everyone who has given their support and well wishes, and also those who enjoy reading this blog. The biggest thank you has to go to my lovely wife who tells me everyday that I'm amazing!
Tonight I would like to talk about how I'm feeling both physically and mentally since leaving hospital. We'll start with mentally.
Its amazing! You have no idea how fantastic it feels to not be locked in a room all the time. Just to feel the breeze and changes in temperature does so much for the soul. As far as emotions are concerned, Im not sure whether its just being out, or whether it has to do with some of the drugs I am on, but I cry for no reason. Even today, we dropped by to see Kell's brother in his new house and he gave me a hug, and I started to cry. Even writing this right now Im tearing up and its really odd. Its not that Im sad, and its not that Im happy, its just everything comes to the surface. So if I see you and start crying, don't think you're special:)
Another huge part of the emotions is definitely being able to spend time with my wife, uninterrupted by doctors, nurses and the contact precautions (gowns and gloves) which had to be adhered to in hospital. And God its nice not to have blue hugs (sad, goodbye hugs)!
I think tomorrow might be a little tough emotionally as I have spent the last three days with the woman of my dreams, and tomorrow, she has to go back to work. But at least tomorrow I'll have my other woman with me, Mumsy!
Physically, Im finding it a little tough at the moment. I'm down to 77kgs and a size 32 pants with a belt. Before my replapse I was about 93kgs of pure beef-cake and a solid 34. Now my legs look like my wrists, and my arms look like they did when I was 17. I have hardly any hair on my body whatsoever! But at least I still have eyebrows and eyelashes, both of which disappeared last time. Because of the GVHD, my skin is peeling off my shoulders, chest and back, but Kell says that all my skin is very smooth and feels like a baby, so I suppose thats a good thing?
I'm struggling with eating as most foods have no taste, even very strong ones don't taste strong at all. It makes it very hard to eat when something doesn't taste nice. I even bought a packet of chicken twisties, but could not taste a thing. Yet, I can still smell, which makes things even more frustrating! Unfortunately, the things that do have some taste are not very good for me. Soft drink tastes good (I think its the bubbles), strawberry milk and some soups. Although, today at Michael's I had some pork ribs which apparently were very strong in flavour, and I could taste them just a little. Its nice to eat some meat!
Partially because of the not eating, mostly because of the no moving, I'm finding it very difficult at the moment with energy, and also the fact that my steroid dose got dropped on friday. Each time I drop the steroids, I get a bit of a come down, so at least they didn't drop them all the way to zero straight away. The doctors have said that they will reduce the steroid dose most weeks until Im off them completely. Today I had to go to the grocery store, and the only way I could make it around for the few items we needed, was I had to push the trolley so I had something to lean on. When we got home I unpacked the groceries, and collapsed on the couch for a while. Thats a bit of an example of how my energy is at the moment.
I've started making plans of things to keep me occupied, that I can do at home, without spending too much money, as its going to be a while before I can work again. Im going to let you all know what they are so you can keep an eye on me and make sure I follow through with them.
1. I have a really cool, old, low-rider push bike that I am about to restore and modify a little (see picture below).
2. I have two book shelves / display units to be sanded and restored.
3. Another cabinet that our birdies sit on that also needs some attention.
4. A shed to clear out.
That is about all I have plans for at the moment other than putting on some weight and getting some muscle back, and in turn having a lot more energy. I think this is where I'll leave it tonight. I just want to finish with another big thank you to everyone.
Peace out!
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