Day 100!

DAY 100 IS FINALLY HERE!!

It may seem to have flown by for you, but for us it has been an arduous journey!

What I am most excited about today is that I finally have Shane, The Man, back again, and by golly gosh I have missed him! For the first time in a very long time, this week Shane has shown us elements of his normal self. His personality has returned along with his sense of humour and self esteem. You don't realise how much you miss something until it comes back to you.

As a very special 100days present for both of us, we went pyjama shopping yesterday. We are now sufficiently garbed for this coming winter! It has taken me ages to actually get Shane to the shops in order to do this. Our lives have been a revolving door of hospital, work, cleaning at home, repeat. Yes, I understand that there really isn't that much more to live when you break it down, but its nice to add in some elements of fun!

So, what does 100 days mean? Well, it doesn't change that much to us day to day. When we sat down with the Doctors to decide about doing the transplant, they gave us some statistics about Shane's life. There was a decent chance he wouldn't survive past 100 days. He has clearly overcome this hurdle, so this hopefully means now he has a better chance of long term survivorship.

Next week Shane will undergo a stack of tests that were done prior to the transplant, and will be repeated again in 6-12 months time to monitor Shane's overall health. This includes a visit with the Dentist and a Dermatologist. He will also get an ECG, a gated heart scan, a chest X-ray and a Bone Marrow Aspirate. This week we also find out how well the graft has taken and Shane will get his PICC line out of his arm. Hospital visits will also drop down to once per week.

This means freedom, baby, yeah! No PICC line = swimming / surfing! Shane still needs to get a lot more strength, but this should get the ball rolling so we can be in the surf asap!

We celebrated today with a trip to the markets this morning, and joined some of our very good friends for their birthdays this evening! We had such a wonderful night with such good mates who have been there for us thick and thin. Thank so much for your support guys!

So even though we have now reached the 100 Days milestone, there are many others we are yet to achieve. So this blog will continue to keep you informed of our progress!

Thank you everyone for sharing this journey with us!

xx