That dirty moustachio has been creeping up for a while now!
I wonder what we'll discover next!
Well, day 80 came by and snuck past without us even realising. All is staying steady at this stage. Bloods are all normal, no more signs of GVHD at this stage. Steroids are down to 15mg. The Tacro (immunosuppressant) however has been bumped up heaps the last few weeks. Apparently Shane's kidneys are working really well and flushing this medication out of his system really quickly. This is great news, however the worst side effect of the Tacro is "shaking". Shane has a tremor in his hands, arms and even legs. It makes drinking a cup of tea interesting! (and maybe slightly entertaining).
Fatigue is still an issue, but the drop in steroids is now much less than before so now the comedown afterwards isn't as severe. Motivation is also really low at the moment which is common with severe fatigue. I've been working hard trying to get Shane out for some exercise and this has had mixed success.
Boredom is also a bit of an issue. Daytime TV easily does your head in very quickly! So, if you are in the area, or if you have some free time, please drop by to say G'day! It would be great to socialise with the outside world, outside of Facebook!
Just a little note to say that "Thanks" is not enough when it comes to our parents. We would be lost without you!
Peace
xx
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