Sunday, 1 September 2013

Three Years Today.

Today marks the third anniversary of Shane's original diagnosis. It has been a tough three years to say the least, but after all this, Shane is still here by my side watching TV.

Sometimes I think of him as the cockroach of the human world. He could just about survive a nuclear holocaust. He's been so resilient to so much treatment, its incredible.

The first time Shane underwent treatment it lasted for five months and was a time of great change and adversity. I documented just about the whole experience in a photo journal, which I have kept on my phone all this time.

As a part of a healing process, I need to share these photos and move on from all the hurt all this has, and still is, causing me. I cant put in words how emotional I get when I even think about all Shane has been through.

As you are all aware, this is definitely a roller coaster ride of extreme lows followed by extreme highs. Many of these photos may not be as you expect. Hopefully you will feel the love emanating from them. One wonderful benefit from all of this is how close you become to all of your loved ones. Even people who didn't know us that well provided much valued support and comfort.

These photos are all taken from my perspective, as I see it.


The dawning of a new day.  This photo was taken early in the morning after finding out what was in store for us. Today we cancelled our wedding and donated sperm to the bank for the future. At this stage, sleep was almost impossible and so, so empty.
 Adjusting to life in 5C.  
It didn't take us long to settle in!
 Swollen ankles.
From huge doses of steroids.
 Our Backyard. 
Shane didn't see the outside world for a whole month. It was a long time...
The "Bed Hair" Do.
A winner every time.
 Neutropaenic mask. 


 A very thoughtful gift. 
 The ice-cream cone that mum bought. 
To keep Shane company at night. Cause, what else do you buy a 26yr old male? This cone created great entertainment for us as our creativity expanded out of sterile, hospital boredom. The cone looked remarkable like male genitalia...












 The Shave.
 The Hickman Line.
The back room.
Yep, thats the mess he left me to sort out before he got home... 
 Twins.
Twins 2.


Hospital Decorations. 
 First night at home...
 With the wedding present I bought for him.
 We weren't home for long. 
Before we had to check in to emergency.
 Mischief.
 Mask.

First Drive. 


 All cleanish.
 New Lounge.
Thank you. You know who you are:)
 Birthday.
 Amaya.
 Face. 
Macbook facial recognition asks me if this is Simon? Shane? James? Amaya?
 Chloe. 
She was the brightest light in our darkest hours. 
When things seemed all too hard, a quick call to Chloe sorted us out. "Uncle Shaggy, are you awright?"
"I am now Chloe"


 The purple gown.
This is now only standard issue garments provided by the hospital. Everyone wears these around the place now.
 Soft Potatoes. Hospital food got very boring very quickly.

 Christmas Eve. 
Not sure if we were to be going home for Christmas or not.
Temperature.
For like the 1000th time.
 Christmas Eve slumber party.
They were so kind to allow me to set up camp for the night. I refused to wake up on my own Christmas morning.
Veiny.
 First Drinkypoo.
 Luke. RIP.

 Australia Day.
 Goodbye Hickman.

 First Swim.

 First Ride.




 Stubble.
 More Stubble.
 Weekend away.


 The beard grows back first.
 First Mow.
First trim. 
Yep. That look is Shane asking me politely to "go away".


 Manlove.
 Snooze.
Love.

xx

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